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An Open Call to all who have Asperger's Syndrome or are in any form of relationship with someone with Asperger's Syndrome (AS) of all ages.
I have concerns about many things to do with Asperger's Syndrome and what it means to each individual who has it. As well as what it means in the lives of those who love someone with Asperger's. Whether that someone is a child, a friend, a family member, a partner/spouse, girl/boyfriend, or a co-worker, Asperger's Syndrome needs to be better understood and cared about by all. My main concerns revolve around the many often divisive aspects of the "Asperger's Community". Many web sites and lists focus on the experience of AS in kids today, and primarily from a parent's perspective. Many websites focus on AS from a child's perspective and are aimed at parents. More and more like my own website: ASPERGER ADULTS and this topic area here on Sutie101 are focusing on AS and adults. All are needed and valid. The thing that seems to me to be lacking and that I don't understand is the separation between the online (and no doubt real life) AS communities of those with AS as a adults and those who have children with AS. The reason I am puzzled is simply that for every parent that has a child today with AS and focuses only on that child and services that may be available to that child not caring or helping adults with AS (who for the most part can't get any professional - organized services dedicated to them and their needs) the very place their son or daughter will end up at the age of majority is not being made better for his/her arrival there. For those who are adults with AS and/or who were diagnosed as adults with AS there is this cavernous abyss. Don't parents of children with AS now care that their kids are going to fall into this abyss with the rest of us at the age of majority? If you are a parent reading this and you do care it would benefit all of us if we could begin to dialogue about this. I think much could be gained, shared, and learned from each group that would benefit all. It might also mean that together the parents of children with AS community and the AS adult |
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